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A
2023-11-26 18:24:23

I have been following the work of the Jain Foundat...

I have been following the work of the Jain Foundation Inc for some time now, and I am truly impressed with their impact. They have managed to create an inclusive platform for individuals affected by muscular dystrophy, providing them with the necessary resources and support. Their website, jain-foundation.org, is a valuable source of information and inspiration for the community. Keep up the good work!

G
2023-11-26 15:06:18

I have been researching organizations that support...

I have been researching organizations that support individuals with muscular dystrophy, and the Jain Foundation Inc is one that stands out. Their work in research, support, and awareness is commendable. I highly recommend visiting their website, jain-foundation.org, to learn more about their initiatives and how you can get involved.

T
2023-11-26 13:18:46

As someone affected by muscular dystrophy, I am gr...

As someone affected by muscular dystrophy, I am grateful for the support and resources provided by the Jain Foundation Inc. Their commitment to finding a cure and improving the lives of individuals like me is truly commendable. I highly recommend exploring their website, jain-foundation.org, for valuable information and support.

G
2023-11-17 18:51:30

🌟🌟🌟🌟🌟

🌟🌟🌟🌟🌟
Impressed with the website's user-friendly interface and extensive resources! 🙌🏼🔍📚

M
2023-10-20 10:11:35

The Jain Foundation Inc has been instrumental in r...

The Jain Foundation Inc has been instrumental in raising awareness about muscular dystrophy. Their efforts in research and support have made a significant impact in the lives of those affected by this condition. I appreciate their dedication and commitment to finding a cure. Their website, jain-foundation.org, is a valuable resource for information and support.

J
2023-9-27 13:21:59

I recently came across this foundation while resea...

I recently came across this foundation while researching different organizations that support muscular dystrophy patients. I must say that I am impressed with the work they do. Their website is informative and easy to navigate, providing valuable resources for patients and their families. I highly recommend checking out jain-foundation.org for more information.

S
2023-8-26 6:39:47

The Jain Foundation Inc is a remarkable organizati...

The Jain Foundation Inc is a remarkable organization that truly makes a difference in the lives of individuals affected by muscular dystrophy. Their dedication to research, support, and raising awareness is unparalleled. I am grateful for their commitment to finding a cure and improving the quality of life for those living with this disease.

E
2023-7-19 11:10:31

I recently discovered the Jain Foundation Inc and ...

I recently discovered the Jain Foundation Inc and was amazed by their dedication to supporting individuals with muscular dystrophy. Their website is a helpful resource filled with valuable information for patients and their families. I highly recommend checking it out!

M
2023-6-29 4:24:04

🌟 The Jain Foundation Inc is doing an excellent jo...

🌟 The Jain Foundation Inc is doing an excellent job in supporting individuals with muscular dystrophy. Their commitment to research and awareness is truly commendable. Their website, jain-foundation.org, offers valuable resources and support. Keep up the fantastic work! 💪

L
2023-3-23 20:51:54

I recently learned about an incredible organizatio...

I recently learned about an incredible organization supporting individuals with muscular dystrophy. They have been making a huge difference in the lives of people affected by this condition. Their website is a great resource for information and support. I highly recommend checking it out!

M
2023-2-7 16:05:01

💪 The Jain Foundation Inc has played a crucial rol...

💪 The Jain Foundation Inc has played a crucial role in funding research and raising awareness about muscular dystrophy. Their efforts have made a significant impact in the lives of those affected by this condition. I am grateful for their commitment and dedication in finding a cure. 💙

N
2022-12-26 3:00:01

👍 The Jain Foundation Inc is doing an amazing job ...

👍 The Jain Foundation Inc is doing an amazing job in helping those with muscular dystrophy. Their commitment to research, support, and raising awareness is commendable. Their website, jain-foundation.org, provides valuable resources for both patients and their families. Keep up the good work! 💪

V
2022-12-4 2:06:47

😊 I would like to express my gratitude to the Jain...

😊 I would like to express my gratitude to the Jain Foundation Inc for their outstanding support and efforts in raising awareness about muscular dystrophy. They provide a supportive community for individuals affected by this condition. Their website, jain-foundation.org, is a valuable source of information and support. Keep up the great work! 💪

О Jain foundation inc

Jain Foundation Inc: маяк надежды для пациентов с дисферлинопатией

Фонд Джайн — некоммерческая организация, которая неустанно работает над поиском лекарства от дисферлинопатии, также известной как LGMD2B, LGMDR2, миопатия Миёси 1. Это редкое генетическое заболевание поражает мышцы и вызывает прогрессирующую мышечную слабость и истощение. Это состояние вызвано мутациями в гене DYSF, кодирующем белок дисферлин.

Фонд Джайн был основан в 2005 году Плави Миттал Джейн и ее мужем Аджаем Джейном после того, как у их сына была диагностирована дисферлинопатия. Они были полны решимости найти лекарство от состояния своего сына и помочь другим, страдающим от этой изнурительной болезни.

С момента своего основания Фонд Джайн добился значительного прогресса в понимании дисферлинопатии и разработке потенциальных методов лечения. Фонд наладил сотрудничество с ведущими исследователями по всему миру для продвижения исследований этого редкого заболевания.

Одной из ключевых инициатив Jain Foundation является реестр Dysferlin Registry, который собирает клинические данные пациентов с дисферлинопатиями со всего мира. Этот реестр помогает исследователям лучше понять естественное течение этих заболеваний и определить потенциальные биомаркеры, которые можно использовать для мониторинга прогрессирования заболевания или ответа на лечение.

В дополнение к своим исследовательским усилиям фонд Jain Foundation также предоставляет услуги поддержки пациентам с дисферлинопатиями и их семьям. Эти услуги включают образовательные ресурсы об этих заболеваниях, программы финансовой помощи для покрытия медицинских расходов, не покрываемых страховкой, и усилия по защите интересов, направленные на повышение осведомленности об этих редких заболеваниях.

Работа фонда получила признание различных организаций, таких как Национальные институты здравоохранения (NIH), Ассоциация мышечной дистрофии (MDA), CureDuchenne Ventures LLC и т. д., которые предоставили финансовую поддержку для продвижения исследований дисфелинопатий.

В заключение, The Jain Foundation Inc — это организация, которая дает надежду тем, кто страдает от дисфелинопатии. Неустанные усилия фонда по продвижению исследований, предоставлению услуг поддержки и повышению осведомленности об этих редких заболеваниях оказали значительное влияние на жизнь пациентов и их семей. При постоянной поддержке со стороны доноров, исследователей и сообщества в целом Джайнский фонд готов сделать еще большие шаги в поиске лекарства от дисферлинопатии.

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