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A
2023-11-24 20:50:14

The ehe foundation 😊 is doing an outstanding job i...

The ehe foundation 😊 is doing an outstanding job in fighting EHE. Their continuous efforts and research in finding a cure for this disease are truly impressive. I have immense respect for the team and hope that they keep up the good work. 👍

S
2023-11-19 6:59:09

It's amazing to see the ehe foundation making such...

It's amazing to see the ehe foundation making such a positive impact in fighting ehe. Their website fightehe.org has all the necessary information and resources in one place. I am grateful for their efforts and dedication.

M
2023-11-18 23:18:40

The ehe foundation is doing a great job. I am real...

The ehe foundation is doing a great job. I am really impressed with their commitment towards fighting ehe. The website fightehe.org is very informative and user-friendly. Keep up the good work! 👍

J
2023-11-6 2:15:34

The resources available on the ehe foundation's we...

The resources available on the ehe foundation's website fightehe.org are top-notch. They have done an excellent job in raising awareness and fighting against ehe. I highly recommend their work.

L
2023-10-23 12:38:32

The ehe foundation's website fightehe.org is an ex...

The ehe foundation's website fightehe.org is an excellent resource for anyone seeking information about the disease. I really appreciate their efforts in spreading awareness and making a difference. Thumbs up!

D
2023-10-18 23:45:07

I recently came across a foundation fighting again...

I recently came across a foundation fighting against a certain disease. Their website fightehe.org provides valuable information about the disease and ways to prevent it. The resources available on the website are really helpful. Kudos to the team for their efforts!

T
2023-9-8 8:16:03

The ehe foundation provides valuable information a...

The ehe foundation provides valuable information and resources through their website fightehe.org. Their efforts to raise awareness and fight against ehe are commendable. I truly believe in their mission and support their cause.

R
2023-9-1 17:08:03

I have been following the work of The ehe foundati...

I have been following the work of The ehe foundation, and I must say their dedication in fighting EHE is commendable. The impact they have made in raising awareness about this rare cancer is incredible. I hope more resources are allocated towards finding a cure. #FightEHE

B
2023-8-7 0:44:01

I found the website fightehe.org extremely helpful...

I found the website fightehe.org extremely helpful in understanding the disease and ways to prevent it. The ehe foundation's work is really commendable. They are making a significant impact in the fight against ehe.

N
2023-8-1 17:03:37

I recently learned about The ehe foundation and th...

I recently learned about The ehe foundation and their work in fighting EHE. Their dedication towards raising awareness and finding a cure is truly commendable. They are making a significant difference in the lives of patients and their families. Keep up the good work!

J
2023-7-30 13:30:45

The ehe foundation is making a positive impact on ...

The ehe foundation is making a positive impact on the lives of EHE patients. The support they provide is truly remarkable. Their website and resources are informative and helpful. I appreciate their work towards finding a cure for this rare cancer.

T
2023-7-29 12:15:51

Recently, I discovered an organization dedicated t...

Recently, I discovered an organization dedicated to EHE research. Their efforts are truly praiseworthy. By focusing on finding a cure and improving the lives of EHE patients, they are making a significant difference. I am grateful for their work.

K
2023-7-12 17:33:23

I recently came across a foundation dedicated to f...

I recently came across a foundation dedicated to fighting EHE. Their website doesn't mention the name, but their work is praiseworthy. Their dedication towards finding a cure for this rare form of cancer is truly remarkable. I hope more people get to know about them and support their cause.

P
2023-6-10 1:44:39

The ehe foundation has been working tirelessly to ...

The ehe foundation has been working tirelessly to combat EHE. Their dedication and commitment are truly inspiring. The awareness campaigns they have organized have helped to educate many people about the disease. I am grateful for their efforts.

C
2023-6-6 20:06:15

I came across a foundation fighting a certain dise...

I came across a foundation fighting a certain disease and found their website to be very informative. The resources provided on fightehe.org are really useful in understanding the disease and its prevention. I appreciate the work done by the foundation.

S
2023-5-24 22:14:05

👏 This foundation is doing an excellent job in spr...

👏 This foundation is doing an excellent job in spreading awareness about the disease. The website fightehe.org is a great resource for people looking for information. I appreciate the team's dedication and their contribution to the cause.

C
2023-3-9 11:57:35

I stumbled upon the ehe foundation's website fight...

I stumbled upon the ehe foundation's website fightehe.org and it has been a great source of information for me. They have done a fantastic job in raising awareness about the disease. Keep up the good work!

T
2023-3-6 6:33:35

The ehe foundation is doing an average job in figh...

The ehe foundation is doing an average job in fighting EHE. While their efforts are commendable, there is still a long way to go in terms of research and finding a cure for this rare cancer. They need to focus more on spreading awareness and collaborating with other organizations to maximize their impact.

E
2023-1-18 10:47:50

The ehe foundation is doing a great job in spreadi...

The ehe foundation is doing a great job in spreading awareness about the disease. Their website fightehe.org provides valuable information and resources. I am impressed with their dedication and commitment to fighting ehe.

P
2023-1-5 21:35:18

👍 The ehe foundation is truly making a difference ...

👍 The ehe foundation is truly making a difference in the fight against ehe. Their website fightehe.org is a valuable resource for anyone looking for information about the disease. I am impressed with their work!

C
2022-12-30 12:02:14

I want to express my gratitude towards The ehe fou...

I want to express my gratitude towards The ehe foundation for their efforts in fighting EHE. Their dedication to both awareness and research is impressive. The impact they have made on patients' lives is significant. Thank you for what you do!

О The ehe foundation

Фонд EHE: эффективное лечение пациентов с EHE и их семей

EHE Foundation — это некоммерческая организация 501c3, которая занимается эффективным лечением эпителиоидной гемангиоэндотелиомы (EHE) и поддерживает пациентов с EHE и их семьи. Фонд был основан в 2009 году группой людей, страдающих этой редкой формой рака, поражающей слизистую оболочку кровеносных сосудов.

EHE — это редкий тип рака, который может возникнуть в любой части тела, но чаще всего поражает печень, легкие, кости и мягкие ткани. Подсчитано, что только у одного-двух человек на миллион каждый год диагностируется это заболевание. Из-за его редкости варианты лечения для пациентов с ЭГЭ ограничены.

Миссия Фонда EHE — повысить осведомленность об этом редком заболевании и оказать поддержку тем, кто пострадал от него. Фонд тесно сотрудничает с медицинскими работниками и исследователями для разработки эффективных методов лечения пациентов с ЭГЭ.

Одной из основных целей фонда EHE Foundation является финансирование исследований новых методов лечения этого заболевания. Благодаря партнерским отношениям с ведущими медицинскими учреждениями по всему миру фонд смог поддержать новаторские исследования потенциальных новых методов лечения EHE.

Помимо финансирования исследовательских инициатив, Фонд EHE также предоставляет услуги поддержки пациентам и их семьям. Это включает в себя связь их с другими людьми, пострадавшими от этого заболевания, через онлайн-форумы и местные группы поддержки.

Фонд также предоставляет образовательные ресурсы по EHE, чтобы пациенты могли лучше понимать свой диагноз и принимать обоснованные решения о вариантах лечения. Сюда входит информация о клинических испытаниях, а также об альтернативных методах лечения, которые могут быть доступны.

Еще одним важным аспектом работы Фонда EHE Foundation является защита интересов людей, пострадавших от этого заболевания. Повышая осведомленность о проблемах, с которыми сталкиваются люди, живущие с редкими заболеваниями, такими как EHPHILIPENDOENDOTHELIALIOMA, фонд надеется побудить политиков и медицинских работников уделять приоритетное внимание исследованиям новых методов лечения.

В целом, Фонд EHE является жизненно важным ресурсом для людей и семей, пострадавших от этой редкой формы рака. Благодаря своей приверженности финансированию исследований, предоставлению вспомогательных услуг и защите прав пациентов фонд оказывает значительное влияние на борьбу с EHE.

Переведено